The Resource Achieving justice in genomic translation : re-thinking the pathway to benefit, edited by Wylie Burke ... [et al.], (electronic resource)

Achieving justice in genomic translation : re-thinking the pathway to benefit, edited by Wylie Burke ... [et al.], (electronic resource)

Label
Achieving justice in genomic translation : re-thinking the pathway to benefit
Title
Achieving justice in genomic translation
Title remainder
re-thinking the pathway to benefit
Statement of responsibility
edited by Wylie Burke ... [et al.]
Contributor
Subject
Genre
Language
  • eng
  • eng
Summary
This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce
Cataloging source
MiAaPQ
Dewey number
  • 174.2/96042
  • 174.296042
Index
index present
Language note
English
LC call number
QH438.7
LC item number
.A26 2011
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
http://library.link/vocab/relatedWorkOrContributorName
Burke, Wylie
http://library.link/vocab/subjectName
  • Human genetics
  • Genomics
  • Genetic screening
Label
Achieving justice in genomic translation : re-thinking the pathway to benefit, edited by Wylie Burke ... [et al.], (electronic resource)
Instantiates
Publication
Note
Description based upon print version of record
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
cr
Content category
text
Content type code
txt
Contents
Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks
Dimensions
unknown
Extent
1 online resource (223 p.)
Form of item
online
Isbn
9781283427937
Media category
computer
Media type code
c
Specific material designation
remote
System control number
  • (CKB)2550000000075452
  • (EBL)829360
  • (OCoLC)769344036
  • (SSID)ssj0000570303
  • (PQKBManifestationID)11359657
  • (PQKBTitleCode)TC0000570303
  • (PQKBWorkID)10592528
  • (PQKB)11668326
  • (MiAaPQ)EBC829360
  • (EXLCZ)992550000000075452
Label
Achieving justice in genomic translation : re-thinking the pathway to benefit, edited by Wylie Burke ... [et al.], (electronic resource)
Publication
Note
Description based upon print version of record
Bibliography note
Includes bibliographical references and index
Carrier category
online resource
Carrier category code
cr
Content category
text
Content type code
txt
Contents
Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks
Dimensions
unknown
Extent
1 online resource (223 p.)
Form of item
online
Isbn
9781283427937
Media category
computer
Media type code
c
Specific material designation
remote
System control number
  • (CKB)2550000000075452
  • (EBL)829360
  • (OCoLC)769344036
  • (SSID)ssj0000570303
  • (PQKBManifestationID)11359657
  • (PQKBTitleCode)TC0000570303
  • (PQKBWorkID)10592528
  • (PQKB)11668326
  • (MiAaPQ)EBC829360
  • (EXLCZ)992550000000075452

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