The Resource Constructing the experiences of people with advanced dementia who are nearing the end of life, Gloria Puurveen, (electronic resource)

Constructing the experiences of people with advanced dementia who are nearing the end of life, Gloria Puurveen, (electronic resource)

Label
Constructing the experiences of people with advanced dementia who are nearing the end of life
Title
Constructing the experiences of people with advanced dementia who are nearing the end of life
Statement of responsibility
Gloria Puurveen
Creator
Contributor
Author
Issuing body
Subject
Genre
Language
eng
Summary
"The purpose of this ethnographic case study research was to examine the experiences of people with advanced dementia nearing the end of life, how carers and family constructed and responded to the psychosocial, spiritual, and physical needs of the residents, and how discursive and contextual factors shaped residents’ experiences. The project comprised case studies of two women with advanced dementia who were identified as nearing the end of life, their carers, and family members. Over an 18-month period, I conducted over 600 hours of participant observation, 30 hours of video observation, and in-depth interviews with 23 carers and 2 family members in a nursing home in British Columbia, Canada. Informed by a dialogical perspective, I employed a case-oriented analysis to construct a rich textual and visual portrait of each woman’s life. The first case study illustrated how carers and family understood the resident’s experiences according to four storylines: 1) the deteriorating body; 2) the institutionalized body; 3) the loved body; and 4) the ambiguous body. These storylines culminated in several tensions that underscore the challenges in caring for someone with advanced dementia nearing the end of life, with the notion of liminality providing a framework for discussing this case. The second case study focused on the co-construction of dialogical relationships between the resident, her carers and family. The findings demonstrated that interactions were marked by an ethical obligation towards the resident that went beyond the boundaries of fulfilling instrumental tasks to encountering and acknowledging the resident as a unique person. Findings are discussed in terms of an aesthetic approach to dementia end-of-life care. The theoretical considerations of silence, the cultivation of knowledge, and the moral obligation for carers to nurture dialogical I-Thou relationships provided a framework for integrating the findings. Together, these case studies inform our understanding of the lived experiences of residents with advanced dementia who are nearing the end of life, and how carers and family come to understand and respond to these experiences"
Additional physical form
Also available in print.
Cataloging source
CaOONL
http://library.link/vocab/creatorName
Puurveen, Gloria
Dewey number
616.8/3
Dissertation note
(Doctor of Philosophy - PhD)--University of British Columbia, 2016
Index
no index present
LC call number
RC521
Literary form
non fiction
Nature of contents
  • dictionaries
  • theses
  • abstracts summaries
  • bibliography
NLM call number
WM 220
http://library.link/vocab/relatedWorkOrContributorName
University of British Columbia
http://library.link/vocab/subjectName
  • Nursing home care
  • Personhood
  • Dementia
  • Dementia
  • End of Life care
  • Palliative treatment
  • Terminal care
  • Patient-Centered Care
Target audience
specialized
Label
Constructing the experiences of people with advanced dementia who are nearing the end of life, Gloria Puurveen, (electronic resource)
Link
https://open.library.ubc.ca/cIRcle/collections/ubctheses/24/items/1.0303147
Instantiates
Publication
Note
"May 2016"
Antecedent source
file reproduced from original
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Extent
1 online resource (xvi, 401 pages)
File format
one file format
Form of item
online
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other physical details
color illustrations
Reformatting quality
unknown
Specific material designation
remote
System control number
(CaOOAMICUS)000044557747
Type of computer file
application/pdf
Label
Constructing the experiences of people with advanced dementia who are nearing the end of life, Gloria Puurveen, (electronic resource)
Link
https://open.library.ubc.ca/cIRcle/collections/ubctheses/24/items/1.0303147
Publication
Note
"May 2016"
Antecedent source
file reproduced from original
Bibliography note
Includes bibliographical references
Carrier category
online resource
Carrier category code
cr
Carrier MARC source
rdacarrier
Content category
text
Content type code
txt
Content type MARC source
rdacontent
Extent
1 online resource (xvi, 401 pages)
File format
one file format
Form of item
online
Level of compression
unknown
Media category
computer
Media MARC source
rdamedia
Media type code
c
Other physical details
color illustrations
Reformatting quality
unknown
Specific material designation
remote
System control number
(CaOOAMICUS)000044557747
Type of computer file
application/pdf

Library Locations

  • Albert D. Cohen Management LibraryBorrow it
    181 Freedman Crescent, Winnipeg, MB, R3T 5V4, CA
    49.807878 -97.129961
  • Architecture/Fine Arts LibraryBorrow it
    84 Curry Place, Winnipeg, MB, CA
    49.807716 -97.136226
  • Archives and Special CollectionsBorrow it
    25 Chancellors Circle (Elizabeth Dafoe Library), Room 330, Winnipeg, MB, R3T 2N2, CA
    49.809961 -97.131878
  • Bibliothèque Alfred-Monnin (Université de Saint-Boniface)Borrow it
    200, avenue de la Cathédrale, Local 2110, Winnipeg, MB, R2H 0H7, CA
    49.888861 -97.119735
  • Bill Larson Library (Grace Hospital)Borrow it
    300 Booth Drive, G-227, Winnipeg, MB, R3J 3M7, CA
    49.882400 -97.276436
  • Carolyn Sifton - Helene Fuld Library (St. Boniface General Hospital)Borrow it
    409 Tache Avenue, Winnipeg, MB, R2H 2A6, CA
    49.883388 -97.126050
  • Concordia Hospital LibraryBorrow it
    1095 Concordia Avenue, Winnipeg, MB, R2K 3S8, CA
    49.913252 -97.064683
  • Donald W. Craik Engineering LibraryBorrow it
    75B Chancellors Circle (Engineering Building E3), Room 361, Winnipeg, MB, R3T 2N2, CA
    49.809053 -97.133292
  • E.K. Williams Law LibraryBorrow it
    224 Dysart Road, Winnipeg, MB, R3T 5V4, CA
    49.811829 -97.131017
  • Eckhardt-Gramatté Music LibraryBorrow it
    136 Dafoe Road (Taché Arts Complex), Room 257, Winnipeg, MB, R3T 2N2, CA
    49.807964 -97.132222
  • Elizabeth Dafoe LibraryBorrow it
    25 Chancellors Circle, Winnipeg, MB, R3T 2N2, CA
    49.809961 -97.131878
  • Fr. H. Drake Library (St. Paul's College)Borrow it
    70 Dysart Road, Winnipeg, MB, R3T 2M6, CA
    49.810605 -97.138184
  • J.W. Crane Memorial Library (Deer Lodge Centre)Borrow it
    2109 Portage Avenue, Winnipeg, MB, R3J 0L3, CA
    49.878000 -97.235520
  • Libraries Annex (not open to the public; please see web page for details)Borrow it
    25 Chancellors Circle (in the Elizabeth Dafoe Library), Winnipeg, MB, R3T 2N2, CA
    49.809961 -97.131878
  • Neil John Maclean Health Sciences LibraryBorrow it
    727 McDermot Avenue (Brodie Centre), 200 Level, Winnipeg, MB, R3E 3P5, CA
    49.903563 -97.160554
  • Sciences and Technology LibraryBorrow it
    186 Dysart Road, Winnipeg, MB, R3T 2M8, CA
    49.811526 -97.133257
  • Seven Oaks General Hospital LibraryBorrow it
    2300 McPhillips Street, Winnipeg, MB, R2V 3M3, CA
    49.955177 -97.148865
  • Sister St. Odilon Library (Misericordia Health Centre)Borrow it
    99 Cornish Avenue, Winnipeg, MB, R3C 1A2, CA
    49.879592 -97.160425
  • St. John's College LibraryBorrow it
    92 Dysart Road, Winnipeg, MB, R3T 2M5, CA
    49.811242 -97.137156
  • Victoria General Hospital LibraryBorrow it
    2340 Pembina Highway, Winnipeg, MB, R3T 2E8, CA
    49.806755 -97.152739
  • William R Newman Library (Agriculture)Borrow it
    66 Dafoe Road, Winnipeg, MB, R3T 2R3, CA
    49.806936 -97.135525
Processing Feedback ...